Blog Archive

The Secret To Success

We all know that living with mold illness is hard and that our journey back to health is more like a marathon than a sprint, yet we all still want to find that secret key that will give us success on our journey. In our instant-gratification society, we all want the magic pill that will give us instant results and instant health. While there is no magic pill when it comes to treating mold illness, there is a secret key that will decide whether or not you are successful.

Okay, maybe it’s not so secret. After all, it is one of the very first steps in the Shoemaker protocol. However, I think we have a tendency to overlook its significance and to not understand how important it is to our success or failure. So what is the secret to your success? Avoiding exposure. Two little words that carry so much weight.

Now don’t get me wrong. I am not saying it is easy. I am simply saying that it is vitally important if you want to regain and then maintain your health. For some people, it will mean leaving their home and possessions or spending the time and money to have them remediated. For others, it will mean giving up their job or looking for another line of work which is more conducive to them being in a safe environment. It might mean you can no longer go to the store or your friend’s house to visit or church on Sunday or out to the movies or the mall on a Friday night. Avoiding exposure will almost certainly require you to make some changes in your lifestyle. How many and exactly what changes are necessary will vary from person to person.

Does this mean that there is no life after mold illness? Certainly not! It is just a different life than the one you had before – a healthier life without the fatigue, pain, and misery that so many of you were living with on a daily basis. Ultimately, the choice is yours. Are you willing to do what it takes to avoid exposure? For some of you, the answer will be no, and regrettably you will continue to suffer from poor health. For others of you, the answer will be yes, and you will find that although the journey isn’t easy it is most certainly worth it.

 

Support Group Meeting Highlights 4/28

A big thank you to those of you who joined us for our most recent telephone support group meeting. We had a wonderful meeting and had an opportunity to discuss ERMI testing as well as mold inspection and remediation. Having a safe environment is vitally important but not always easy! Sometimes finding the source of our exposure can be tricky as we all spend time in a variety of different indoor environments.  We also discussed a bit about the treatment protocol and dealing with side effects.

It has been a pleasure to get to know many of you through these telephone support group meetings. However, Kelly and I are working on putting together a face-to-face meeting in the near future for those of you that would be interested. We thought it might be nice to be able to put a face to the voice you hear on the other end of the phone line! We all have similar struggles and can be a help and encouragement to each other on this journey. Stay tuned for further details as they become available! For those of you that would be interested in attending a face-to-face meeting, I would appreciate it if you could please send me a quick email at kathy@survivingmoldillness.com and let me know where you live and if you would be willing to travel to attend the meeting. We are trying to decide whether it would be best to hold the meeting in the Port Charlotte or Fort Myers area but want as many people as possible to be able to attend as we think it would be beneficial for everyone to meet others that are dealing with the same issues. Nobody knows what you are going through better than someone who has already been there! For those of you that are further along in this journey, I want to encourage you to participate in the meetings so that you can be a source of help and encouragement for others. None of us has all the answers, but we all have a unique perspective and experiences that we can share with each other.

Our next telephone support group meeting will be held on Thursday, May 29, from 4-5 PM. I hope to see you all there!

Support Group Meeting Highlights 3/28

Thank you so much to those of you that participated in our most recent support group telephone conference. We had a wonderful and informative meeting as we had an opportunity to share this journey with each other and provide support and encouragement. For those of you that were not able to attend, we would certainly love to have you join us at our next meeting. You will find some of the highlights of our recent meeting listed below:

  1. We discussed the treatment medications including the new pure cholestyramine available through PharmiCare, BEG spray, and VIP treatment. As we are all at different phases of treatment, we had a chance to discuss our own experiences and where we are at in the process.
  2. We also discussed the fact that this is definitely a journey and not a quick process. Unfortunately, there are no quick fixes for this illness, and those of us that are farther along in the treatment process tried to provide insight into the length of time it actually takes while acknowledging the fact that we are all different with unique environments and other variables.
  3. One thing we all are very grateful for is to have a wonderful doctor that is helping us on this journey.
  4. We talked about the possibility of having a face-to-face meeting in the future. If this is something you would be interested in, stay tuned for further details as we are in the process of trying to find a suitable location to gather together.
  5. We also discussed the new forums available here on the Surviving Mold Illness website. This is a great place to ask questions, provide insight, or just get some encouragement along the way in your own personal journey. My hope is that this will become a thriving community of people that will help and support each other as we all strive to regain our health and learn how to live in this new reality. This is a great place to get support in between our regular telephone support meetings or for those of you that due to scheduling issues are not able to join us for our telephone meetings. You can register for the forums by clicking on the register button in the Forum Login box on the right-hand side of the page.

Please feel free to share this website and support group info with others you feel may benefit, and also share us on Facebook by clicking the “Like” button on the left-hand side of the page. For information on our next telephone support group meeting, please check out the Support Group tab above. We look forward to having you join us at our next meeting!